Caregiving and dementia/Admin/Resources

Open knowledge content about caregiving and dementia, particularly training materials, are welcome and needed.

This page lists caregiving and dementia resources which could be embedded within the ecosystem of Wikimedia projects and issues and strategies for doing so.

See also: external links.

What content is needed?

1. International dementia training priority areas
2. Australia: Australian Dementia Training Study Centre (DTSC) priority areas
   1. Wiki cataloguing of all DTSC projects, including
      1. Project overview
      2. Links to existing resources (e.g., bibliographies, resources on national DTSC website)
3. Useful content owned by others (negotiate access and release
   1. Student essays
   2. Honours theses
4. Images
5. Videos (e.g., guest lectures, knowledge transfer workshops/lectures, training videos)

Issues to consider

Issues to consider in identifying and contributing content include:

1. Start small - pick "low-hanging" fruit to start with - what is readily available?
2. File formats - This doesn't really matter because all file formats can be converted into wiki format
3. Copyright needs consideration - consider:
   1. Who owns the content?
   2. What is the copyright license?
   3. Can a Creative Commons Share-alike license be negotiated with the copyright owner? (required to use on the Wikimedia Foundation platforms)

Sources of content

Content sources which can be targetted for developing caregiving and dementia wiki content include:

Department of Health and Ageing (DoHA)

1. Dementia resource guide (pdf and html)
   1. Developed to help people who care for those who have dementia.
   2. Supports a holistic approach that considers the social, emotional, physical and spiritual needs of the person with dementia and those around them.
   3. Links from National Priority Area (NPA) wiki topics to relevant parts of the Guide should be added to:
      1. Coverpage
      2. Introduction
      3. Is this dementia?
      4. Prevention & risk reduction
      5. Assessment & diagnosis
      6. Medical treatment options
      7. Forward planning
      8. Driving)
      9. Behavioural & psychological symptoms
      10. Quality of life
      11. Quality care
      12. Social and emotional issues
      13. Specific community groups
      14. Support services
      15. Government policy
      16. Training
      17. Practice guidelines
      18. Audiovisual resources
      19. Further information and weblinks
      20. Glossary
      21. Appendices

Dementia Training Study Centres (DTSCs)

• Website http://dtsc.com.au
  • Resources
  • E-learning
  • Australian Journal of Dementia Care
  • Survey of education needs for social workers, occupational therapists and diversional therapists

WMF Sister Project resources

The Caregiving and Dementia Wiki project uses the ecology of Wikimedia Foundation sister projects. The Wikimedia Foundation (WMF) is a North American, non-profit, educational organisation, with an Australian chapter. The Wikimedia sister projects reside on hosted servers and use Mediawiki software. A key advantage of partnering with the Wikimedia projects is that the wiki Caregiving and Dementia project can build on, and contribute further to, pre-existing resources, such as:

1. Wikipedia (encyclopedic articles)
   1. Dementia, w:Category:Dementia
   2. Caregiving and dementia, w:Category:Caregiving and dementia
   3. Alzheimer's disease
2. Wikiversity (learning materials and activities)
   1. Dementia, Category:Dementia
   2. Caregiving and dementia, Category:Caregiving and dementia
3. Wikibooks (new books)
   1. Dementia (search)
   2. Category:Dementia
4. Wiktionary (dictionary)
   1. Dementia
5. Wikinews (news)
   1. Dementia (search)
6. Wikisource (previously published books)
   1. Dementia (search)
7. Wikicommons (files including images, audio, and video)
   1. Dementia (search)
8. For more, see full list of projects

Perusal of these links will illustrate that whilst some useful information about dementia and dementia care exists within the Wikimedia projects, that these resources are also in need of further development. Priority areas for dementia care training in Australia could be fruitfully targetted.

Problem scenario: A google search for "caregiving and dementia" currently lists the Wikipedia article on Caregiving and dementia as #3: What do you think about the quality of that article? What can we do to improve it?

Other existing free online resources

Other free and open online resources about caregiving and dementia NPAs may also exist, and can be linked to or incorporated into the wiki. Examples include:

1. Design for dementia on iTunes
2. Images from creative commons repositories such as http://flickr.com

Student essays

1. (~15) - NSW/ACT DTSC has been running an undergraduate essay competition since 2010. These essays will collated on the wiki, for further development (pending copyright negotiation)
2. List of essays:
   1. Dementia and motivation, 2010 (Book chapter)
   2. Caregiver training
   3. See more Category:Caregiving and dementia/Essays...
   4. ...

Honours thesis

1. NSW/ACTW DTSC has been running a $5000 scholarship for Honours theses on the topic of dementia. Thesis abstracts and/or summaries are being collated onto the wiki:

Guest lectures

1. NSW/ACT and WA DTSCs have been hosting guest lectures and these have been recorded and are available online.
2. These could be converted to ogg format and uploaded to Wiki Commons, then embedded as appropriate on sister project pages
3. The lectures could also be uploaded to a separate youtube channel (per centre or all of DTSC)

Training materials

1. What training materials are available that can be uploaded?

Images

Development of an open library of appropriate images for use in caregiving and dementia resources and training materials could utilise existing resources at:

1. Commons
2. Flickr

Multimedia

A developing list of freely usable multimedia resources about caregiving and dementia:

• Caregiving and dementia/Lectures
• commons:Dementia

Research

• Dementia Collaborative Research Centres (Australia)

Bloggers

• Jennifer Gerhold, Dementia Today

WMF site users

By searching dementia care relevant article using WikiDashboard, key contributors can be identified. As this project develops, these people can be invited and encouraged to contribute:

• w:User:Garrondo[1] - a Spanish psychologist who has contributed significantly to w:Parkinson's disease[2], w:Alzheimer's disease[3] and w:Caregiving and dementia[4]
• w:User:LeadSongDog[5] - has contributed significantly to w:Alzheimer's disease[6] and w:Caregiving and dementia[7].

Example wiki projects

Here are some examples of other similar(ish) wiki projects:

1. Australian Cancer Council - Clinical Practice Guidelines - Uses Mediawiki as a stand-alone installation
2. Health Informatics - Uses Mediawiki as a stand-alone installation
3. The Quitting-Smoking Wiki - Uses Mediawiki on the Wikia platform
4. History of the Paralympic Movement in Australia - Uses Mediawiki on the Wikimedia Foundation platforms